Exploring Meaningful Patient Engagement in ADAPTABLE (Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-term Effectiveness)
Background:
Genuine patient engagement can improve research relevance, impact and is required for studies using the National Patient-Centered Clinical Research Network including major multicenter research projects. It is unclear, however, how best to integrate patients into governance of such projects.
Methods:
Experiences of an HCV Patient engagement group: a seven-year journey
Historically, few publications exist where patient engagement in clinical studies is a driving force in study design and implementation. The Patient Centered Outcomes Research Institute (PCORI), established in 2010, employed a new model of integrating stakeholder perspectives into healthcare research.
Strategically Advancing Patient and Family Advisory Councils in New York State Hospitals
This report describes the landscape of PFACs in New York State hospitals, as well as their prevalence and variation in characteristics. The report also explores PFACs’ performance and impact, not only on hospital strategy and operations but also on the quality and safety of care.
Diabetes stories: use of patient narratives of diabetes to teach patient-centered care
A critical component to instituting compassionate, patient-centered diabetes care is the training of health care providers. Our institution developed the Family Centered Experience (FCE), a comprehensive 2-year preclinical program based on longitudinal conversations with patients about living with chronic illness. The goal of the FCE is to explore the experience of illness from the patient’s perspective and ultimately to incorporate this perspective in clinical practice.
Patient as Teacher
The Patient as Teacher program uses this patient-centred approach to promote and foster humanism in medicine. Patient-driven sessions are led by 2-3 cancer survivors who share their personal stories, experiences with the health care system, and perspectives on how their illness has impacted their lives. Students listen, engage in dialogue, and ask questions. This collaboration actively involves patients and survivors in the education process as partners in teaching, feedback, and evaluation.
Patient as teacher sessions contextualize learning, enhancing knowledge, communication, and participation of pharmacy students in the United Kingdom
Purpose: This study aimed to evaluate the impact of Patient As Teacher (PAT) sessions on the knowledge, communication skills, and participation of pharmacy students in the United Kingdom.
"I felt some prejudice in the back of my head": Nursing students' perspectives on learning about mental health from "Experts by Experience"
WHAT IS KNOWN ON THE SUBJECT?: Consumer participation in mental health services is embedded in mental health policy in many countries.
Outcomes of Consumer Involvement in Mental Health Nursing Education: An Integrative Review
This integrative review analyzed the research on consumer involvement in mental health nursing education in the last decade. We aimed to derive the main contents, methods, and outcomes of education using consumer involvement for mental health nursing students. We searched six electronic databases using English and Korean search terms; two authors independently reviewed the 14 studies that met the selection criteria. Studies on the topic were concentrated in Australia and some European countries; most of them used a qualitative design.
Active involvement of patients in pharmacist education has a positive impact on students' perspective: a pilot study
Background: Patient-led education contributes to the implementation of practical experience of working with patients in health care professional curricula. There are few descriptions of patients' involvement in pharmacists' training and most often, the patients have been used as passive props to facilitate training. More recently, greater emphasis has been given to a more active form of patient involvement but the application in the curriculum of pharmacy has not been conceptualized.
Active patient involvement in the education of health professionals
Context: Patients as educators (teaching intimate physical examination) first appeared in the 1960s. Since then, rationales for the active involvement of patients as educators have been well articulated. There is great potential to promote the learning of patient-centred practice, interprofessional collaboration, community involvement, shared decision making and how to support self-care.
Methods: We reviewed and summarised the literature on active patient involvement in health professional education.