Advance Care Planning for Spanish-Language Speakers: Patient, Family, and Interpreter Perspectives.
Language access barriers for individuals with limited English proficiency are a challenge to advance care planning (ACP). Whether Spanish-language translations of ACP resources are broadly acceptable by US Spanish-language speakers from diverse countries is unclear. This ethnographic qualitative study ascertained challenges and facilitators to ACP with respect to Spanish-language translation of ACP resources. We conducted focus groups with a heterogeneous sample of 29 Spanish-speaking persons who had experience with ACP as a patient, family member and/or medical interpreter.
What Is Palliative Care? Videos From Jared Rubenstein MD
This resource offers a set of videos aimed at healthcare workers that cover various aspects of palliative care.
Examples include:
Care Toward the End of Life in Older Populations and Its Implementation Facilitators and Barriers: A Scoping Review
The purpose of this review is to inform health system improvements for care of elderly populations approaching the end of life (EOL) by identifying important elements of care and implementation barriers and facilitators.
Advance Care Planning Experiences Among Sexual and Gender Minority People
Advance care planning (ACP) can promote patient-centered end-of-life (EOL) care and is intended to ensure that medical treatments are aligned with patient's values. Sexual and gender minority (SGM) people face greater discrimination in health care settings compared with heterosexual, cisgender people, but it is unknown whether such discrimination occurs in ACP and how it might affect the ACP experiences of SGM people.
Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life
Abundant literature has argued the significance of religion, belief, and spirituality at the end of life. This study aims to add to this literature by exploring palliative professionals’ views in this area. By means of an in-depth interviewing method, this paper reports data from 15 hospice and palliative care professionals. Participants were recruited from five hospice and palliative care organisations, and the data were managed and analysed with thematic analysis and NVivo (version 11).
International End-Of-Life Doula Association: Resources
International End-Of-Life Doula Association offers a comprehensive list of resources for clinicians and clients on end-of-life toolkits, legacy guides, advanced care planning guides, palliative and hospice care resources, funeral/burial and after-death care, grief and bereavement resources, community support networks. They also offer book recommendations, podcasts and videos.
Dying in America. Improving Quality and Honoring Individual Preferences Near the End of Life
Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families.
What Matters to Me: A Workbook for People with Serious Illness
What Matters to Me: A Workbook for People with Serious Illness is a workbook/guide designed to help those with a serious illness prepare to talk to their healthcare team about what is most important.
Guides include:
Your Conversation Starter Guide: How to talk about what matters to you and have a say in your health care.
This is a tool to help you talk about what matters to you and your wishes for the care you receive through the end of life. Talking with the important people in our life can bring us closer together. It also helps us create the foundation of a care plan that’s right for us — a plan that will be available when the need arises. The Conversation Project wants to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.
Autism and Grief All Professionals Program
This is a 90-minute continuing education program designed to empower social workers, nurses, paraprofessionals, speech therapists, occupational therapists, and other caring professionals in their service to adults with autism experiencing grief and loss. Expert panelists will examine the disenfranchisement that can occur for grieving people with autism and discuss ways to enfranchise them during their grief journey. The program will also address grief after non-death losses, anticipatory mourning, and how adults with autism may best be supported.