Family Involvement in Dementia Care
Family Involvement in Dementia Care helps family members like you work together with healthcare providers in order to provide the best possible care for your loved one with dementia. Videos, family interviews, hand-outs and break-out discussions teach you how to work as partners with staff in both community and long-term care settings.
Better Together: Partnering with Families
Isolating patients at their most vulnerable time from the people who know them best places them at risk for medical error, emotional harm, inconsistencies in care, lack of preparedness for the transitions of care, and unnecessary costs. Yet in many hospitals and health systems, outdated visiting policies still separate families and other loved ones during hospital stays.
The Schwartz Center for Compassionate Healthcare: Patient and Family Resources
In today’s fast-paced healthcare environment, crowded with competing priorities, the human connection is too easily overlooked leaving caregivers burned out and patients and families fearful and suffering.
Through innovative programs, education and advocacy, the Schwartz Center is working to support caregivers, healthcare leaders and others and bring compassion to every healthcare experience.
Care That Fits
For care to be effective it must respond well to a patient’s situation. To do so, care must be bio-medically correct with a sound argument backing its implementation. In addition, it should be consistent with the patient’s personal values, desires, and goals. Lastly, care should be feasible given the resources that can be mobilized and the opportunity costs of doing so (what will have to be shifted, postponed or canceled to make room for the new tasks).
Ask Me 3: Good Questions for Your Good Health
Ask Me 3® is an educational program that encourages patients and families to ask three specific questions of their providers to better understand their health conditions and what they need to do to stay healthy.
Patient and family involvement in adult and intensive care settings: a scoping review
Background
Despite international bodies calling for increased patient and family involvement, these concepts remain poorly defined within literature on critical and intensive care settings.
Objective
This scoping review investigates the extent and range of literature on patient and family involvement in critical and intensive care settings. Methodological and empirical gaps are identified, and a future agenda for research into optimizing patient and family involvement is outlined.
Methods
Expert by Experience
Our Experts by Experience programme involves the public in inspections and activities.
Experts by Experience are people who have recent personal experience (within the last five years) of using or caring for someone who uses health, mental health and/or social care services that we regulate.
From 1 April 2020, Choice Support delivers Expert by Experience services through a new, single national contract across England.
McPin Foundation
The McPin Foundation exists to transform mental health research by putting the lived experiences of people affected by mental health problems at the heart of research methods and the research agenda.
Patient-Centered Outcomes Research Institute
PCORI funds studies that can help patients and those who care for them make better-informed healthcare choices.
The Art of Empathy: Employing the arts in social inquiry with poor working-class women
This article looks at how the arts can be employed in participatory social research with poor working-class women as an innovative approach to collecting data as well as a powerful means of disseminating research findings. It questions traditional means of knowledge production and suggests that the use of art in this context challenges many of the assumptions inherent in sociological inquiry.