What Matters To Me: A Workbook for People with Serious Illness
What Matters To Me: A Workbook for Peope with Serious Illness is a workbook that helps people with serious illness be equipped to talk to their healthcare providers about what is most important to them. It is not a guide specific to assisting with medical decisions, but rather a self-reflective exercise in developing health goals and preferences. This guide is also designed for caregivers to help someone with a serious illness through useful conversations with healthcare teams.
Serious Illness Care Program: The Role of Social Workers Guide
The Serious Illness Care Progam Guide allows social workers to walk clients through several topics regarding serious illness care including their goals, values, and communication strategies. The guide also assists social workers in assessing clients' understanding of their own illness and what their health information preferences might be. It also assists social workers in ways to share prognosis, explore key topics and close/document the sessions with clients. To download the free guide, users mist fill out a form and user agreement.
Patient Priorities Care: Implementation Toolkit
Patient Priorities Care helps patients and clinicians focus all decision-making and healthcare on what matters most: patients’ own health priorities. It was developed by clinicians, patients, caregivers, health system leaders, and payers. Healthcare students and professionals are also able to gain Continued Medical Education and Maintainance of Certification credits by utilizing these toolkits. Disclaimer: Users of this resource require a login.
Pathways Center for Grief & Loss Resource List
Pathways Center for Grief & Loss provides resources of vidoes, reading lists and handouts on a wide variety of grief & loss topics.
Online Video Library
A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians
Abstract: Lesbian, gay, bisexual, transgender, and queer plus (LGBTQ+) adults face challenges accessing end-of-life care. Understanding the experiences of LGBTQ+ persons within the end-of-life context is crucial in addressing their needs and supporting equity at end of life. The aim is to review recent literature documenting the experiences of LGBTQ+ adults nearing end-of-life, identifying needs, barriers to care, and translating this into clinical recommendations.
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review
Abstract: Lesbian, gay, bisexual, transgender, and queer/questioning (LGBTQ+) individuals experience discrimination throughout the care continuum, including during serious illness and at end of life. High-quality palliative care requires that health professionals deliver individualized services that reflect the needs, experiences, and preferences of LGBTQ+ persons. Its aim is to identify and appraise existing evidence related to the needs, experiences, and preferences for palliative and end of life care among LGBTQ+ individuals with serious illness.
Palliative Care Fast Facts and Concepts
Palliative Care Fast Facts and Concepts provides concise, practical, peer-reviewed and evidence-based summaries on key palliative care topics important to clinicians and trainees caring for patients facing serious illness. They have around 500 topics covered, and they are searchable by keyword. To navigate this, go to fast facts, then the fast facts directory to be able to search by keyword.
Categories include:
A systematic review of religious beliefs about major end-of-life issues in the five major world religions
Abstract: The objective of this study was to examine the religious/spiritual beliefs of followers of the five major world religions about frequently encountered medical situations at the end of life (EoL).
Case Study: Mrs. Booker
This case study on fall preventiondepicts the STEADI approach with a low-risk patient who has come in for a wellness check. The case study illustrates the assessment, identification of risk factors, and fall prevention recommendations.
Source: Centers for Disease Control and Prevention (CDC), 2017.
https://www.cdc.gov/
Evaluation of the Older Patient
This video presentation (48:13 min) given by Dr. Bruce E. Robinson discusses various opportunities for healthcare professionals to improve the efficiency of comprehensive evaluations of older adult patients. He also reviews the role of comprehensive assessments in developing clinical expectations. Finally, he ends his presentation by discussing the role of the clinicial in facilitating good choices for care of older adults.
Source: University of Southern Florida GWEP, 2016.
https://health.usf.edu/gwep