Experiences of an HCV Patient engagement group: a seven-year journey
Historically, few publications exist where patient engagement in clinical studies is a driving force in study design and implementation. The Patient Centered Outcomes Research Institute (PCORI), established in 2010, employed a new model of integrating stakeholder perspectives into healthcare research.
Strategically Advancing Patient and Family Advisory Councils in New York State Hospitals
This report describes the landscape of PFACs in New York State hospitals, as well as their prevalence and variation in characteristics. The report also explores PFACs’ performance and impact, not only on hospital strategy and operations but also on the quality and safety of care.
Diabetes stories: use of patient narratives of diabetes to teach patient-centered care
A critical component to instituting compassionate, patient-centered diabetes care is the training of health care providers. Our institution developed the Family Centered Experience (FCE), a comprehensive 2-year preclinical program based on longitudinal conversations with patients about living with chronic illness. The goal of the FCE is to explore the experience of illness from the patient’s perspective and ultimately to incorporate this perspective in clinical practice.
Patient as Teacher
The Patient as Teacher program uses this patient-centred approach to promote and foster humanism in medicine. Patient-driven sessions are led by 2-3 cancer survivors who share their personal stories, experiences with the health care system, and perspectives on how their illness has impacted their lives. Students listen, engage in dialogue, and ask questions. This collaboration actively involves patients and survivors in the education process as partners in teaching, feedback, and evaluation.
Patient as teacher sessions contextualize learning, enhancing knowledge, communication, and participation of pharmacy students in the United Kingdom
Purpose: This study aimed to evaluate the impact of Patient As Teacher (PAT) sessions on the knowledge, communication skills, and participation of pharmacy students in the United Kingdom.
Medical student perspectives on conducting patient experience debrief interviews with hospitalized children and their families
Purpose
To explore how medical students completing a pediatric clerkship viewed the benefits and barriers of debrief interviews with hospitalized patients and families.
Methods
In this study, focus groups were conducted with pediatric clerkship students after completion of a debrief interview. The constant comparative method was used with Mezirow’s transformative learning theory as a lens to explore perceptions of the benefits and challenges of performing the interview.
Results
Effect of expert-patient teaching on empathy in nursing students: a randomized controlled trial
Background: Empathy is a relevant clinical competence for nursing students. Involvement of expert patients in nursing education could help students develop their innate capacity to empathize. Objective: To evaluate the effect of expert-patient teaching on empathy development in nursing students. Methods: This randomized controlled trial was conducted among 144 first-year undergraduate nursing students divided into two equal groups.
Geriatrics: Communication about Feeding Tubes
In this video (17:18 mins), Dr. Paula Lester Associate Fellowship Program Director of Geriatric Medicine at Winthrop University Hospital, describes how end of life care issues such as feeding of patients with advanced dementia is a difficult and often emotionally fraught time for patients’ families and requires strong communication skills from their clinicians. This video demonstrates communication skills related to this topic including risk of skin breakdown and hospice eligibility.
Dealing with GRIEF
The Hospice and Palliative Nurses Association (HPNA), in collaboration with the Hospice and Palliative Nurses Foundation, the Social Work Hospice and Palliative Care Network, the Association of Professional Chaplains, and the Oncology Nursing Society have developed grief educational resources for frontline providers. "Dealing with Grief" is a series of five videos, each 2-5 minutes long which are meant to provide timely and practical information and resources to professional caregivers, patients and their significant others on grief education during these unprecedented times.
Evaluating Memory Concerns
This educational module designed by CATCH-ON is part of the Basics of Aging program which provides education about aging and older adult care for health care providers, other caregivers, families, and older adults themselves. By the end of this module, learners will be able to: (1) identify common memory changes that occur before families receive a dementia diagnosis; (2) understand the process of getting a dementia diagnosis from a health care team; and (3) identify resources for addressing a family member's ongoing care-related needs. This module is also available in Spanish.