What Matters to Me: A Workbook for People with Serious Illness
What Matters to Me: A Workbook for People with Serious Illness is a workbook/guide designed to help those with a serious illness prepare to talk to their healthcare team about what is most important.
Guides include:
Your Conversation Starter Guide: How to talk about what matters to you and have a say in your health care.
This is a tool to help you talk about what matters to you and your wishes for the care you receive through the end of life. Talking with the important people in our life can bring us closer together. It also helps us create the foundation of a care plan that’s right for us — a plan that will be available when the need arises. The Conversation Project wants to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.
Autism and Grief All Professionals Program
This is a 90-minute continuing education program designed to empower social workers, nurses, paraprofessionals, speech therapists, occupational therapists, and other caring professionals in their service to adults with autism experiencing grief and loss. Expert panelists will examine the disenfranchisement that can occur for grieving people with autism and discuss ways to enfranchise them during their grief journey. The program will also address grief after non-death losses, anticipatory mourning, and how adults with autism may best be supported.
Complimentary Education Programs From The Hospice Foundation
These free Hospital Foundation of America programs are useful resources for hospice and grief professionals, hospice volunteers, grief support groups, or the broader community.Resource includes webinars and self-study programs. Many programs are freely available, though without CE credit. CE credit is available with program purchase.
Signs Of Approaching Death
Everyone’s life is different. Death is an individual experience, too. For some people, the dying process may last weeks. For others, it may last a few days or hours. A dying person’s experience may be influenced by their illness or medications, but certain signs and symptoms are common. Patients who begin hospice care earlier in their illness may not experience any symptoms for many months. But as death approaches, you may notice some of these changes.
MN Directive Document From Healthy Pathways
The MN Directive document from Healthy Pathways is an example of an advance healthcare directive tailored for American Indian and Alaska Native communities. It provides space for elders to share what treatment options, cultural preferences, and decision makers they wish to have in their end-of-life care. The document also outlines what kind of power their decision maker would have following illness or injury if they cannot communicate their needs for themselves.
Weaving Pathways Video Part 2
This is a 6:51 min video that discusses end of care choices for Tribal, Rural, Underserved, Indigenous, Native, Native American, Aboriginal, Native American, Tribal Organization (TTOUR) communities members, aimed at TTOUR community members.
Weaving Pathways Video for Providers
This video that discusses for healthcare providers end of care choices for Tribal, Rural, Underserved, Indigenous, Native, Native American, Aboriginal, Native American, Tribal Organization (TTOUR) communities members.
Honoring Choices: A Comprehensive List Of Resources On Advanced Care Planning
Who would speak for you if you couldn’t speak for yourself? Advance Care Planning (ACP) is a process which helps you think about, talk about, and write down your preferences for future health care. While it is not an easy topic to consider, it is important for every adult 18+ to have a health care directive – a written plan for loved ones and healthcare providers to follow – so that your wishes are known in case a severe injury or illness renders you unable to communicate.
Finding Your Way Through Sudden Loss & Adversity
This resource, Finding Your Way Through Sudden Loss and Adversity, will include a variety of lessons on loss and growth as well as practical suggestions on how you can live with loss in a healthy way and grow from the experience. The workbook is broken up into three main sections that focus on living with loss, growing through loss, and preparing for loss. You can think of this workbook as a “choose your own adventure” type of resource. In other words, you do not necessarily need to read through the resource in any particular order.