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Top Ten Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans

Top Ten Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans

Death Dying and End of Life Resources's picture
Submitted by Death Dying and... on Dec 1, 2024 - 2:46pm CST

Racial disparities, including decreased hospice utilization, lower quality symptom management, and poor-quality end-of-life care have been well documented in Black Americans. Improving health equity and access to high-quality serious illness care is a national palliative care (PC) priority. Accomplishing these goals requires clinician reflection, engagement, and large-scale change in clinical practice and health-related policies.

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Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims

Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims

Death Dying and End of Life Resources's picture
Submitted by Death Dying and... on Dec 1, 2024 - 2:27pm CST

Islam is the fastest-growing religion across the world and in the United States. Adherents of Islam are known as Muslims. Globally, Muslims comprise the second largest religious group with 1.8 billion people, or 24% of the world's population, and range in racial and ethnic diversity.1 As this population continues to grow, palliative care clinicians will invariably care for a Muslim patient therefore making it important to have a basic understanding of values, traditions, and beliefs held by them.

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Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review.

Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review.

Death Dying and End of Life Resources's picture
Submitted by Death Dying and... on Dec 1, 2024 - 2:18pm CST

Persons from underrepresented racial and ethnic groups experience disparities in access to and quality of palliative and end-of-life care. Objectives: To summarize and evaluate existing palliative and end-of-life care interventions that aim to improve outcomes for racial and ethnic underrepresented populations in the United States.

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Advance Care Planning for Spanish-Language Speakers: Patient, Family, and Interpreter Perspectives.

Advance Care Planning for Spanish-Language Speakers: Patient, Family, and Interpreter Perspectives.

Death Dying and End of Life Resources's picture
Submitted by Death Dying and... on Dec 1, 2024 - 2:03pm CST

Language access barriers for individuals with limited English proficiency are a challenge to advance care planning (ACP). Whether Spanish-language translations of ACP resources are broadly acceptable by US Spanish-language speakers from diverse countries is unclear. This ethnographic qualitative study ascertained challenges and facilitators to ACP with respect to Spanish-language translation of ACP resources. We conducted focus groups with a heterogeneous sample of 29 Spanish-speaking persons who had experience with ACP as a patient, family member and/or medical interpreter.

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Care Toward the End of Life in Older Populations and Its Implementation Facilitators and Barriers: A Scoping Review

Care Toward the End of Life in Older Populations and Its Implementation Facilitators and Barriers: A Scoping Review

Death Dying and End of Life Resources's picture
Submitted by Death Dying and... on Nov 29, 2024 - 4:47pm CST

The purpose of this review is to inform health system improvements for care of elderly populations approaching the end of life (EOL) by identifying important elements of care and implementation barriers and facilitators.

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Advance Care Planning Experiences Among Sexual and Gender Minority People

Advance Care Planning Experiences Among Sexual and Gender Minority People

Death Dying and End of Life Resources's picture
Submitted by Death Dying and... on Nov 29, 2024 - 4:38pm CST

Advance care planning (ACP) can promote patient-centered end-of-life (EOL) care and is intended to ensure that medical treatments are aligned with patient's values. Sexual and gender minority (SGM) people face greater discrimination in health care settings compared with heterosexual, cisgender people, but it is unknown whether such discrimination occurs in ACP and how it might affect the ACP experiences of SGM people.

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Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life

Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life

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Submitted by Death Dying and... on Nov 29, 2024 - 4:27pm CST

Abundant literature has argued the significance of religion, belief, and spirituality at the end of life. This study aims to add to this literature by exploring palliative professionals’ views in this area. By means of an in-depth interviewing method, this paper reports data from 15 hospice and palliative care professionals. Participants were recruited from five hospice and palliative care organisations, and the data were managed and analysed with thematic analysis and NVivo (version 11).

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Prediction models of all-cause mortality among older adults in nursing home setting: A systematic review and meta-analysis.

Prediction models of all-cause mortality among older adults in nursing home setting: A systematic review and meta-analysis.

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Submitted by Death Dying and... on Nov 26, 2024 - 7:37pm CST

Few studies have meta‐analyzed different prognostic models developed for older adults, especially nursing home residents. We aimed to systematically review and meta‐analyze the performance of all published models that predicted all‐cause mortality among older nursing home residents.

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The Bright Ideas TBI Camp: fostering innovation in interprofessional education and collaborative practice for traumatic brain injury by students in rehabilitation professions

The Bright Ideas TBI Camp: fostering innovation in interprofessional education and collaborative practice for traumatic brain injury by students in rehabilitation professions

Shelly Bates's picture
Submitted by Shelly Bates on Nov 13, 2024 - 4:15pm CST

This report describes an innovative interprofessional education collaborative practice (IPCP) experience for rehabilitation professions students using a unique on-campus camp model through a community-academic partnership. Throughout the three-day camp, known as the Bright Ideas TBI Camp, interprofessional student groups deliver tailored health and wellness services to individuals with disabilities due to traumatic brain injury and their caregivers.

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Complexity in the context of palliative care: a systematic review

Complexity in the context of palliative care: a systematic review

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Submitted by Death Dying and... on Oct 30, 2024 - 4:56pm CDT

People receiving palliative care have complex, wide-ranging, and changing needs, not just physical distress, but also psychosocial, practical, and spiritual. Influences on complexity in palliative care are different among healthcare providers and may depend on diverse aspects of the patient's condition, time, and environment. Therefore, this study aimed to integrate and describe the perspective of complexity in palliative care.

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