Patient Reported Outcomes Measurement Information System (PROMISE)

Submitted by National Center... on Oct 21, 2016 - 10:15am CDT

Instrument

Authors:

National Institutes of Health (NIH)

PROMIS Health Organization

Overview:

PROMIS® is a set of patient-centered tools that can be used to evaluate the physical, mental, and social health of adults and children. The tools can be used with the general population and individuals with chronic conditions. PROMIS instruments measure concepts such as pain, fatigue, physical function, depression, anxiety and social function. PROMIS has constructed item banks (a collection of questions measuring the same thing that can be administered in short forms or adaptively through computerized adaptive testing). Short forms require 4–10 items; computerized adaptive testing require 3–7 items for more precise scores. Professionally developed by scientists working with the National Institutes of Health, the measures have strong validity data. Traditionally, the measures are used as primary or secondary endpoints in clinical studies of the effectiveness of treatment. They could also be used as outcomes of organizational training interventions incorporating interprofessional care models or practices.

Link to Resources

Resource links:

Link to the Assessment Center, which houses PROMIS and other instruments and provides statistical support.

Information on measures can be found here on the Health Measures website.

Information on measure development and validity research can be found here on the Health Measures website.

Attachment:

InstrumentLibrary for PROMIS andothers.pdf

Descriptive Elements

Who is Being Assessed or Evaluated?:

Individuals

Instrument Type:

Self-report (e.g., survey, questionnaire, self-rating)

Source of Data:

Patients, clients

Notes for Data Sources:

Adults and children; general population and persons with chronic conditions.

Instrument Content:

Patient / client health status

Instrument Length:

Varies; short forms contain 4-10 items, computerized adaptive testing contain 3-7 items.

Item Format:

Not specifically described on the various web pages. "PROMIS® tools measure what patients are able to do and how they feel." Download the tools for more information.

Administration:

Can be administered in paper and pencil, computer adaptive tests (CAT), or via mobile app.

Scoring:

It appears the PROMIS has two distribution points, both of which provide various types of support on a fee-for-service basis. The tools themselves are free. The Assessment CenterSM is an online research management tool (http://www.assessmentcenter.net/). It enables researchers to create study‐specific websites for capturing participant data securely. Studies can include measures within the Assessment Center library (e.g., PROMIS) as well as custom instruments created or entered by users. PROMIS measures can be downloaded for administration on paper or be included in an online study (http://assessmentcenter.net/). The Assessment Center enables real‐time scoring of CATs and short forms, storage of protected health information (PHI) in a separate, secure database, real‐time data export, and ability to capture endorsement of online consent forms among many other features. The website also provides scoring manuals for programs doing their own analyses. "Health Measures" is funded by NIH to expand and automate PROMIS and three other measurement systems, and provides statistical support, research design consultation, and related expertise. Go to: http://www.healthmeasures.net/explore-measurement-systems/promis.

Language:

English, Spanish, and many others.

Norms:

Not described.

Access:

Open access (available on this website)

Notes on Access:

PDFs of PROMIS® measures need no preparation, are “respondent ready,” and available for free. Click here to access from Health Measures.

PROMIS measures are copyrighted and publicly available without license, fee, or royalty. If users need a license agreement, the PROMIS Health Organization, a 501(c)(3) organization, can provide one upon request.

Psychometric Elements: Evidence of Validity

Content: