Advance Care Planning Experiences Among Sexual and Gender Minority People
Advance care planning (ACP) can promote patient-centered end-of-life (EOL) care and is intended to ensure that medical treatments are aligned with patient's values. Sexual and gender minority (SGM) people face greater discrimination in health care settings compared with heterosexual, cisgender people, but it is unknown whether such discrimination occurs in ACP and how it might affect the ACP experiences of SGM people.
Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life
Abundant literature has argued the significance of religion, belief, and spirituality at the end of life. This study aims to add to this literature by exploring palliative professionals’ views in this area. By means of an in-depth interviewing method, this paper reports data from 15 hospice and palliative care professionals. Participants were recruited from five hospice and palliative care organisations, and the data were managed and analysed with thematic analysis and NVivo (version 11).
What Matters to Me: A Workbook for People with Serious Illness
What Matters to Me: A Workbook for People with Serious Illness is a workbook/guide designed to help those with a serious illness prepare to talk to their healthcare team about what is most important.
Guides include:
Your Conversation Starter Guide: How to talk about what matters to you and have a say in your health care.
This is a tool to help you talk about what matters to you and your wishes for the care you receive through the end of life. Talking with the important people in our life can bring us closer together. It also helps us create the foundation of a care plan that’s right for us — a plan that will be available when the need arises. The Conversation Project wants to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.
Complimentary Education Programs From The Hospice Foundation
These free Hospital Foundation of America programs are useful resources for hospice and grief professionals, hospice volunteers, grief support groups, or the broader community.Resource includes webinars and self-study programs. Many programs are freely available, though without CE credit. CE credit is available with program purchase.
MN Directive Document From Healthy Pathways
The MN Directive document from Healthy Pathways is an example of an advance healthcare directive tailored for American Indian and Alaska Native communities. It provides space for elders to share what treatment options, cultural preferences, and decision makers they wish to have in their end-of-life care. The document also outlines what kind of power their decision maker would have following illness or injury if they cannot communicate their needs for themselves.
Weaving Pathways Video Part 2
This is a 6:51 min video that discusses end of care choices for American Indian and Alaska Natives (AIAN) communities members, aimed at AIAN community members.
Weaving Pathways Video for Providers
This video that discusses for healthcare providers end of care choices for American Indian and Alaska Natives (AIAN) communities members.
About the organization: In 2018, Honoring Choices of Minnesota approached the Center of American Indian and Minority Health (CAIMH) to collaborate on a project to increase healthcare directives in AIAN communities. CAIMH assembled AIAN students, faculty and community members to identify to create a toolkit for providers and community members.
Honoring Choices: A Comprehensive List Of Resources On Advanced Care Planning
Who would speak for you if you couldn’t speak for yourself? Advance Care Planning (ACP) is a process which helps you think about, talk about, and write down your preferences for future health care. While it is not an easy topic to consider, it is important for every adult 18+ to have a health care directive – a written plan for loved ones and healthcare providers to follow – so that your wishes are known in case a severe injury or illness renders you unable to communicate.
Educational grief brochures
At the Highmark Caring Place, one of the questions we hear most is, "What do I say to the children?" We hear it from parents about their children; school staff who are caring for a grieving child in the classroom; mental health, social service, and medical personnel; and concerned friends and family who are trying to help a family in the midst of their grief.