Top Ten Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans
Racial disparities, including decreased hospice utilization, lower quality symptom management, and poor-quality end-of-life care have been well documented in Black Americans. Improving health equity and access to high-quality serious illness care is a national palliative care (PC) priority. Accomplishing these goals requires clinician reflection, engagement, and large-scale change in clinical practice and health-related policies.
Top Ten Tips Palliative Care Clinicians Should Know About Caring for Muslims
Islam is the fastest-growing religion across the world and in the United States. Adherents of Islam are known as Muslims. Globally, Muslims comprise the second largest religious group with 1.8 billion people, or 24% of the world's population, and range in racial and ethnic diversity.1 As this population continues to grow, palliative care clinicians will invariably care for a Muslim patient therefore making it important to have a basic understanding of values, traditions, and beliefs held by them.
Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review.
Persons from underrepresented racial and ethnic groups experience disparities in access to and quality of palliative and end-of-life care. Objectives: To summarize and evaluate existing palliative and end-of-life care interventions that aim to improve outcomes for racial and ethnic underrepresented populations in the United States.
Advance Care Planning for Spanish-Language Speakers: Patient, Family, and Interpreter Perspectives.
Language access barriers for individuals with limited English proficiency are a challenge to advance care planning (ACP). Whether Spanish-language translations of ACP resources are broadly acceptable by US Spanish-language speakers from diverse countries is unclear. This ethnographic qualitative study ascertained challenges and facilitators to ACP with respect to Spanish-language translation of ACP resources. We conducted focus groups with a heterogeneous sample of 29 Spanish-speaking persons who had experience with ACP as a patient, family member and/or medical interpreter.
Advance Care Planning Experiences Among Sexual and Gender Minority People
Advance care planning (ACP) can promote patient-centered end-of-life (EOL) care and is intended to ensure that medical treatments are aligned with patient's values. Sexual and gender minority (SGM) people face greater discrimination in health care settings compared with heterosexual, cisgender people, but it is unknown whether such discrimination occurs in ACP and how it might affect the ACP experiences of SGM people.
Palliative Professionals’ Views on the Importance of Religion, Belief, and Spiritual Identities toward the End of Life
Abundant literature has argued the significance of religion, belief, and spirituality at the end of life. This study aims to add to this literature by exploring palliative professionals’ views in this area. By means of an in-depth interviewing method, this paper reports data from 15 hospice and palliative care professionals. Participants were recruited from five hospice and palliative care organisations, and the data were managed and analysed with thematic analysis and NVivo (version 11).
International End-Of-Life Doula Association: Resources
International End-Of-Life Doula Association offers a comprehensive list of resources for clinicians and clients on end-of-life toolkits, legacy guides, advanced care planning guides, palliative and hospice care resources, funeral/burial and after-death care, grief and bereavement resources, community support networks. They also offer book recommendations, podcasts and videos.
What Matters to Me: A Workbook for People with Serious Illness
What Matters to Me: A Workbook for People with Serious Illness is a workbook/guide designed to help those with a serious illness prepare to talk to their healthcare team about what is most important.
Guides include:
Your Conversation Starter Guide: How to talk about what matters to you and have a say in your health care.
This is a tool to help you talk about what matters to you and your wishes for the care you receive through the end of life. Talking with the important people in our life can bring us closer together. It also helps us create the foundation of a care plan that’s right for us — a plan that will be available when the need arises. The Conversation Project wants to help everyone talk about their wishes for care through the end of life, so those wishes can be understood and respected.
Autism and Grief All Professionals Program
This is a 90-minute continuing education program designed to empower social workers, nurses, paraprofessionals, speech therapists, occupational therapists, and other caring professionals in their service to adults with autism experiencing grief and loss. Expert panelists will examine the disenfranchisement that can occur for grieving people with autism and discuss ways to enfranchise them during their grief journey. The program will also address grief after non-death losses, anticipatory mourning, and how adults with autism may best be supported.